Team Mary Ashley!
Team Mary Ashley!
A little trip down memory lane 🙂
Today we celebrate a special young man. He made a choice to be an organ donor. When his life came to an end all too soon, he and his family chose to bring something positive to their tragedy. 10 years ago- he saved Mary Ashley Barbot! She was in critical condition and would not have survived much longer. We grieve for him and with his family for their loss, but we will celebrate him on this day every year. Because of him- we have had this special little girl to bless our lives and many others for 10 years. Although this kidney is no longer working, and she needs another one so badly, we would not have her here today without this young man’s choices. This would have been his birthday. So we celebrate him as well as the new birthday he gave MaryAshley. Our family has all made the choice to be organ donors and hope we too will be able to give back life to someone in need. If you haven’t given this any thought, I urge you to consider it, get informed and have these discussions now. What better way to bring happiness to an often otherwise devastating time. Now we hope to be able to find a living donor for Mary Ashley as it is so much harder to find a match now. We want to express our sincere gratitude to the many that have tried to be tested, and to those trying now and in the future. Blessings to you all!
Snow doesn’t last very long when it’s 70 degrees outside! 🙂
It’s been a while, so we wanted to update you on Mary Ashley’s status. She is currently going to an outpatient facility for dialysis three times a week, and each session lasts 3-4 hours. Due to the length of time she has been waiting for a kidney, her medical team has been brainstorming ways to decrease the antibodies Mary Ashley has built up. As you know, these antibodies are the reason she’s only a match with 1% of the population–the reason finding a kidney has been so difficult.
There is a possibility that chemotherapy could decrease these antibodies. If a kidney donor is not found soon, Mary Ashley will begin chemo to hopefully reduce the antibodies and widen her pool of potential matches.
We are also trying to get her on the donor list in multiple states in an effort to expand our search.
So many of you have already been tested, and we are so grateful. If you know of anyone who may be interested in being tested, please let them know that the process is very simple! The donor information on the How To Donate A Kidney tab can help answer any questions and contains all the paperwork needed to get the process started. The health history form is now available to fill out online, which simplifies and expedites the process.
Thank you so much for your continued support of Mary Ashley. We know that a kidney is out there!
Here are a few more pictures from Mary Ashley’s princess afternoon and some others that have been taken since we last updated!
As many of you know, Mary Ashley has been in need of a kidney transplant for nearly 3 years now. Many of you and your friends have tried to donate a kidney to her, and we are so grateful to each of you. As of now, we still have not been able to find a match for her because her antibody levels are so high. She has been on the national list, and has partners in a national exchange, but still, no match. Due to new technology, and our wonderful Nephrologist, she is now able to be tested for people with O and B blood types! Before it could only be an O donor. We are so hopeful that expanding the donor options will be the answer for her. Right now, she is doing hemodialysis all evening after school 3 days a week. She is such a trooper, and loves everyone and every moment to the fullest. Please share this with anyone you think may be interested in being tested. All information can be found on this site! Check out the Donor Information tab to learn more. We know things happen in perfect timing, and that the perfect match is out there somewhere. Thank you all for your love and support! We have the best family and friends in the world!
We were back in the ER and admitted to the hospital again on the 26th because Mary Ashley was complaining of chest pain. After many tests, doctors still aren’t sure what was going on, but we were able to bring her home this afternoon. She is looking better and was super happy to see her Aunt Carol and Uncle Van today. She is now asleep on the couch. Hoping she continues to improve each day.