The highlight of every Wednesday for Mary Ashley is going horseback riding with the school. Thankful to all that make this possible for her.

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Absolute peace!!! Sun, sailing, dolphins, my kids, and friends. Only thing that keeps it from being perfection is that Chip Barbot didn’t get to come.

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This video explains very well what we are preparing to do with Mary Ashley Barbot in a few weeks. It is a process of giving her chemotherapy with the intent of desensitizing her to be able to be easier to match to a donor. Please keep her in your prayers that it is successful and the side effects are not too harsh. Her doctor will be looking again at the many people that have tested for her to see if with this process she may possibly come closer to matching one. It is not a long video- and explains it much better than I can. Sharing this as many people have asked about why we will be doing chemo. Thank you all for the prayers and love you give our family. I can’t even explain how much hope it gives us!

What a fun night with some special people 🙂

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This was the start of dialysis for Mary Ashley Barbot‘s dialysis journey 3 years ago. So thankful that this technology keeps her here with us! Yet so very hopeful to find a matching donor for her.

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Team Mary Ashley!

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A little trip down memory lane 🙂

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Today we celebrate a special young man. He made a choice to be an organ donor. When his life came to an end all too soon, he and his family chose to bring something positive to their tragedy. 10 years ago- he saved Mary Ashley Barbot! She was in critical condition and would not have survived much longer. We grieve for him and with his family for their loss, but we will celebrate him on this day every year. Because of him- we have had this special little girl to bless our lives and many others for 10 years. Although this kidney is no longer working, and she needs another one so badly, we would not have her here today without this young man’s choices. This would have been his birthday. So we celebrate him as well as the new birthday he gave MaryAshley. Our family has all made the choice to be organ donors and hope we too will be able to give back life to someone in need. If you haven’t given this any thought, I urge you to consider it, get informed and have these discussions now. What better way to bring happiness to an often otherwise devastating time. Now we hope to be able to find a living donor for Mary Ashley as it is so much harder to find a match now. We want to express our sincere gratitude to the many that have tried to be tested, and to those trying now and in the future. Blessings to you all!

Snow doesn’t last very long when it’s 70 degrees outside! 🙂

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Mary Ashley got a princess afternoon before the school dance! Some fabulous ladies got her hair, makeup, and nails done, and gave her a dress and tiara!

Mary Ashley got a princess afternoon before the school dance! Some fabulous ladies got her hair, makeup, and nails done, and gave her a dress and tiara!

It’s been a while, so we wanted to update you on Mary Ashley’s status. She is currently going to an outpatient facility for dialysis three times a week, and each session lasts 3-4 hours. Due to the length of time she has been waiting for a kidney, her medical team has been brainstorming ways to decrease the antibodies Mary Ashley has built up. As you know, these antibodies are the reason she’s only a match with 1% of the population–the reason finding a kidney has been so difficult.

There is a possibility that chemotherapy could decrease these antibodies. If a kidney donor is not found soon, Mary Ashley will begin chemo to hopefully reduce the antibodies and widen her pool of potential matches.

We are also trying to get her on the donor list in multiple states in an effort to expand our search.

So many of you have already been tested, and we are so grateful. If you know of anyone who may be interested in being tested, please let them know that the process is very simple! The donor information on the How To Donate A Kidney tab can help answer any questions and contains all the paperwork needed to get the process started. The health history form is now available to fill out online, which simplifies and expedites the process.

Thank you so much for your continued support of Mary Ashley. We know that a kidney is out there!

Here are a few more pictures from Mary Ashley’s princess afternoon and some others that have been taken since we last updated!

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