Category Archives: Uncategorized

Please pray that Dialysis goes well for Mary Ashley Barbot tonight. She has really had some ups and downs lately, and we are trying very hard to keep her out of the hospital this week.

Did the Kidney Walk today with some fabulous folks! Thank you for walking even in the rain! We are truly blessed with great friends!!

We were able to spend some quality time with Carol Stukes, Taylor Stukes, and Carol-Gray Stukes today- they had no idea how much we needed that ray of sunshine. Taylor ran in the Lifepoint Race

Posing for a photo during brunch on Shem Creek

Posing for a photo during brunch on Shem Creek

Taylor and Mary Ashley with Chance

Taylor and Mary Ashley with Chance

Mary Ashley performing a stunt!

Mary Ashley performing a stunt!

Mary Ashley cheering!

Mary Ashley cheering!

Lifepoint Race for Life 5k, Feb 28, 2015

Lifepoint Race for Life 5k, Feb 28, 2015

Taylor and Mary Ashley hugging at the finish line

Taylor and Mary Ashley hugging at the finish line

Everyone posing with Chance, Donate Life SC's mascot, after the race

Everyone posing with Chance, Donate Life SC’s mascot, after the race

for Life 5k this morning, we enjoyed a delicious brunch RB’s, and then we all got to watch Mary Ashley cheer! It was a great day.

Several people have asked me lately for an update: Mary Ashley continues to do peritoneal dialysis at least 12 hours a day. It is going well enough to continue, but still quite a challenge some days. She has a fistula and gets monthly Iron infusions through it. She, as always, has a great attitude and gives everyday 200%. Because of that, and her fabulous nurse, Sharon Maralit, she goes to school most days by 10am, and loves it. We have been blessed with so many who have tried to donate, but we still do not have a match for a kidney. She has 3 amazing partners in the national exchange, but still no match to the over 350 donors that offers. We are still praying that there is someone out there that will match. While not limited to this, there is a theory by her doctors that a Hispanic donor may be a closer match. That is based on her antibodies. March makes 2 years on dialysis. Please feel free to share and if anyone is interested in being tested, please refer them to me or the Donation Information page here. Thank you all for your love and support!

Today is the ninth anniversary or Mary Ashley’s first kidney transplant. At that time, she was 20 months old, in ICU, and hanging onto life by a thread! A very special young man lost his life that day and we grieve for him and his family always. Through his tragedy, he saved lives because he and his family chose organ donation. He is a hero beyond measure! We are grateful to him and his family each day we see our precious girl smile and laugh. Though this kidney is failing now, it is the reason we have had Mary Ashley with us and still have her today! Mary Ashley truly loves her life, family, and friends and lives it to her fullest abilities! So today, I thank God for this young man, his family, as well as our family, friends, medical team, and community that have supported each of us. Many people have been so generous, kind, and compassionate. They have celebrated the good times and carried us through the bad times. We are so blessed by the wonderful people we have met on this journey and for the opportunity to witness so much goodness in this world!

Love the wonderful kids and our ARCAE family! Mary Ashley had a great time at the winter dance.

Love the wonderful kids and our ARCAE family! Mary Ashley had a great time at the winter dance.

Mary Ashley and Case!

Mary Ashley and Case!

Getting ready to cheer for the Charleston Baptist Church Upward Sports League!

Getting ready to cheer for the Charleston Baptist Church Upward Sports League!

Baking with Grandma!

Baking with Grandma!

Yes- I think he’s a keeper!! Good baby love from little Case Dameron. Enjoyed Christmas dinner with the Dameron family!

 

MA & Case Christmas 2014